At three months old, Adalia Rose was diagnosed with Hutchinson-Gilford progeria; a genetic condition also branded as Benjamin Button Disease. The rare illness affects fewer than 500 children worldwide, and it’s classified by extremely accelerated aging with a life expectancy of 13-year-old.
Adalia Rose was diagnosed with Hutchinson-Gilford progeria when she was three months old.
The condition is also known as Benjamin Button disease and affects fewer than 500 children worldwide.
As Rose grew, she, fortunately, found fame on social media, where she has amassed nearly 400K followers on Instagram and 2.91million subscribers on YouTube. But sadly, her family announced on Instagram in a lengthy post that the Texas-native passed away due to her condition at age 15.
According to an update on Instagram and Facebook, Rose has now been “set free from this world” on 12 January.
The post added: “She came into it quietly and left quietly, but her life was far from it.”
“January 12, 2022, at 7 p.m. Adalia Rose Williams was set free from this world. She came into it quietly and left quickly, but her life was far from it. She touched MILLIONS of people and left the biggest imprint in everyone that knew her,” Her family wrote.
The YouTuber touched millions of people and left the biggest imprint on everyone that knew her.
Her family believes she is no longer in pain and is now dancing to all the music she loves.
They added: “She is no longer in pain and is now dancing away to all the music she loves. I really wish this wasn’t our reality, but unfortunately, it is. We want to say thank you to everyone that loved and supported her. Thank you to all her doctors and nurses who worked for YEARS to keep her healthy; the family would like to mourn this huge loss in private.”
As the family mourn in private, they have expressed their gratitude for the love and support.
Here’s Rose pictured with her parents, Natalia and Ryan.
Adalia had regularly been compared to Benjamin Button, the subject of the hit movie that starred Brad Pitt, which told of the story of a man who aged backward. Not only did the rare condition affect her growth, it equally caused problems with her voice and joints. So far, people have been taking to the post’s comments on Instagram and Facebook, sending their condolences to the family.
Rose had always shared her struggle in life with her followers; showed off her dances and passion for music.
Natalia (not pictured) described Rose as ‘rambunctious’ and said she loved watching her grow.
One person wrote: “She was a special person that gave joy to many all over the planets. She will always be with you.” Another wrote on Facebook: “I’m so sorry, Natalia and Ryan. Adalia lived life to the fullest each and every day. She touched so many people through her videos and taught us to never take anything for granted. Fly high, sweet angel!” A third also stated: “An inspiration to do many. So sad.”
Rose, pictured with her Grandma, has had struggles and sometimes wishes she looked like everybody else.